The treatment
of FMS is frustrating for both patients and their physicians. In general,
drugs used to treat musculoskeletal pain, such as aspirin, non-steroidals
and cortisone are not particularly helpful in this situation. As in any
chronic pain condition, education is an essential component that helps
patients understand what can or can't be done as well as teaching them
to help themselves. |
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It is important
for a patient's physician to discover whether there is a cause for sleep
disturbances. Such sleep problems include sleep apnea, restless leg syndrome
and teeth grinding. If the cause for a patient's sleep disturbance cannot
be determined, low doses of an anti-depressive group of drugs, called tricyclic
anti-depressants or short acting sleeping medications such as zolpidem (Ambien), may be beneficial. Patients need to understand these medications
are not addictive when used in low dosages (eg., Amitriptyline 10 mg at
night) and have very few side effects. In general, routine use of sleeping
pills such as Halcion, Restoril, Valium, etc. should be avoided as they
impair the quality of deep sleep. Ambien (zolpidem), is claimed to avoid
this problem. |
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There is increasing
evidence that a regular exercise routine is essential for all Fibromyalgia
syndrome patients. This is easier said than done because increased pain
and fatigue caused by repetitive exertion makes regular exercise quite
difficult. However, those patients who do get into an exercise regimen
experience worthwhile improvement and are reluctant to give up. In general,
FMS patients must avoid impact loading exertion such as jogging, basketball,
aerobics, etc. Regular walking, the use of a stationary exercycle and pool
therapy utilizing an Aqua Jogger (a floatation device which allows the
user to walk or run in the swimming pool while remaining upright) seem
to be the most suitable activities for FMS patients to pursue. Supervision
by a physical therapist or exercise physiologist is of benefit wherever
possible. In general, 20 minutes of physical activity, 3 times a week at
70% of maximum heart rate (220 minus your age) is sufficient to maintain
a reasonable level of aerobic fitness. |
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Drugs such as
aspirin and Advil are not particularly effective and seldom do more
than take the edge off FMS pain. Narcotics ( propoxyphene, codeine,
morphine,oxycodone,
methadone) may provide a worthwhile relief of pain in a small subgroup
of severely afflicted patients, but Fibromyalgia patients seem especially
sensitive to opioid side effects (nausea, constipation, itching and mental
blurring) and often decide against the long term use of these drugs. Narcotic
painkillers have usually been avoided by most physicians for fear of addiction.
However recent research has shown that addiction seldom occurs when these
medications are use in chronic pain states. It is important to understand
the difference between addiction and dependence which occurs with all these
drugs in the majority of patients .
Particularly
painful areas often may be helped for a short time (2-3 months) by trigger
point injections. This involves injecting a trigger point with a local
anesthetic (usually 1% Procaine) and then stretching the involved muscle
with a technique called spray and stretch. It should be noted the injection
of a tender point is quite painful (indeed, if it is not painful the injection
is seldom successful). After the injection, there is typically a 2-4 day
lag before any beneficial effects are noted. Other techniques which directly
help the tender areas on a transient basis are heat, massage, gentle stretching
and acupuncture.
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About 20% of
FMS patients have a co-existing depression or anxiety state which needs
to be appropriately treated with therapeutic doses of anti-depressants
or anti-anxiety drugs often in conjunction with the help of a clinical
psychologist or psychiatrist. Basically, patients who have a concomitant
psychiatric problem have a double burden to bear. They will find it easier
to cope with their FMS, if the psychiatric condition is appropriately treated.
It is important to understand Fibromyalgia syndrome itself is not a psychogenic
pain problem and that treatment of any underlying psychological problems
does not cure the Fibromyalgia. |
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Most FMS patients
quickly learn there are certain things they do on a daily basis that seem
to make their pain problem worse. These actions usually involve the repetitive
use of muscles or prolonged tensing of a muscle, such as the muscles of
the upper back while looking at a computer screen. Careful detective work
is required by the patient to note these associations and where possible
to modify or eliminate them. Pacing of activities is important; we have
recommended patients use a stop watch that beeps every 20 minutes. Whatever
they are doing at that time should be stopped and a minute should be taken
to do something else. For instance, if they are sitting down, they should
get up and walk around or vice versa. |
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Patients who
are involved in fairly vigorous manual occupations often need to have their
work environment modified and may need to be retrained in a completely
different job. Certain people are so severely affected, that consideration
must be given to some form of monetary disability assistance. This decision
requires careful consideration, as disability usually causes adverse financial
consequences as well as a loss of self esteem. In general, doctors are
reluctant to declare Fibromyalgia patients disabled and most FMS applicants
are automatically turned down by the Social Security Administration. However,
each patient needs to be evaluated on an individual basis before any recommendations
for or against disability are made. |
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Common
Sense:
Individuals with Fibromyalgia can make a meaningful contribution to their
own treatment by learning as much as they can about how their bodies respond
to Fibromyalgia. For example, do certain activities (especially those involving
repeated or prolonged muscle use) tend to exacerbate Fibromyalgia? How
can such activities be modified or replaced and thus be better tolerated?
Do certain types/levels of activity cause delayed pain reactions a day
or two later? Also crucial is learning to pace oneself, take frequent breaks,
and/or say "No" to requests that simply cannot be accommodated on a particularly
bad Fibromyalgia day. If certain commitments cannot be avoided, is it possible
to get extra rest before and after to aid in recovery? While these ideas
sound simple in theory, they are often difficult to implement. |
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Because successful
FMS treatment can involve a variety of medical professionals, patients
usually benefit from a coordinated, team approach to disease management.
Ideally, all medical practitioners treating a given patient work with the
patient toward a positive outcome. Just because someone starts out with
severe Fibromyalgia symptoms doesn't mean that (s)he cannot find worthwhile
improvement with a skillfully devised and comprehensive treatment program.
According to rheumatologist and Fibromyalgia specialist Russell Rothenberg,
M.D., "Patients need to know that medication, judicious rest, exercise,
physical therapy, and good diets can do more than just control the symptoms
of Fibromyalgia; they can control the disease process as well. There is
no cure for Fibromyalgia, but people do get better! Hopefully, as better
medications that are more specific for Fibromyalgia are developed, and
people are diagnosed earlier in their illness, more individuals with Fibromyalgia
will go into remission, or at least partial remission, and feel better." |
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